Do you suffer from…

…Vaginal/vulvar itching, burning, stabbing/throbbing sensations; painful sex; urinary urgency/frequency/pain? If so, then you’ve just found a “Hope Chest” filled with information & support.

We’ll explain how the conditions that trigger “chronic pelvic pain syndrome” (such as irritable bowel, interstitial cystitis, painful bladder syndrome, vulvodynia, vestibulitis, endometriosis) cause sexual pain and what you need to know to get help.

 

Download a free excerpt from our booklet, “64 Tips for Sexual & Pelvic Pain Relief,” and get Secret Suffering updates when you subscribe.

Please enter your email address to download free tips from our booklet & join our mailing list.

TV Interview with Dr. Echenberg

Below is a segment about interstitial cystitis,
featuring Dr. E and one of his patients.
This segment aired on the Lehigh Valley, PA
television show, "Talk to Your Doctor."

"In our practice, approximately 85 – 90% of
patients with chronic pelvic pain – no
matter what the cause – experience sexual
pain or discomfort as the main contributor
to their diminished quality of life."
Dr. Echenberg

IPPS Cover Story by Dr. Echenberg

November 2008 issue of the International Pelvic Pain Society newsletter cover story (PDF): A Tribute to Dr. C. Paul Perry: One Clinician's Experience with a Successful Model for Chronic Pelvic Pain Management

You don’t have to suffer in secret any longer!

Take a look around our site, download our free tips, and then go to our Healing Room blog to begin sharing your story, questions, and thoughts with others in our community.

On the Secret Suffering website, we’ve created a safe haven for you to share your story and thoughts about sexual/pelvic pain and read others’, hear what experts in the field of sexual pain have to say, get the latest news and more. We encourage you or partners of those who suffer to blog in our Healing Room.

Who we are


The Secret Suffering website is a joint effort of Dr. Robert J. Echenberg (we call him “Dr. E!”), gynecologist and specialist in the field of pelvic and sexual pain and women’s health for over three decades, and Susan Bilheimer, writer, developer of the PerimenopauseSupport.com website and sexual pain sufferer.
Together, we are writing a book called Secret Suffering, the first book that tells the story of how pelvic and sexual pain affects women and their partners, in their own words, and provides information on how to facilitate your healing and work with your doctor. You can read more about our bios here.

Our book on sexual pain and its effects on relationships is at the publisher!

We did it! Our manuscript for Secret Suffering was sent to our publisher(Praeger)on November 28th. Anticipated publication date is May 30, 2009. It’s been quite a monumental task, but immensely rewarding. Click here to read more about the book.

“64 Tips to Relieve Sexual Pain Tips Booklet”

In the meantime, we’ve written a tips booklet with suggestions on how to help yourself as you work with your doctor and for doctors to give to their patients. Click here to view a PDF product sheet or call 888-241-1461. We’ll be updating everything on the site soon!

Privacy Policy

Our Privacy Policy is very simple – we will never sell, share or distribute your contact information in any way. Period.

Usage Policy

We have a very strict usage policy for this site. www.SecretSuffering.com is intended as a safe and comfortable online home for those who suffer from a very sensitive and delicate condition. Unsolicited advertising, spamming, flaming or inappropriate comments will be immediately deleted and their senders barred from future postings.

We want your feedback!

Please feel free to contact us at any time with your suggestions and comments.

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