…Vaginal/vulvar itching, burning, stabbing/throbbing sensations; painful sex; urinary urgency/frequency/pain? If so, then you’ve just found a “Hope Chest” filled with information & support.
We’ll explain how the conditions that trigger “chronic pelvic pain syndrome” (such as irritable bowel, interstitial cystitis, painful bladder syndrome, vulvodynia, vestibulitis, endometriosis) cause sexual pain and what you need to know to get help.
Below is a segment about interstitial cystitis,
featuring Dr. E and one of his patients.
This segment aired on the Lehigh Valley, PA
television show, "Talk to Your Doctor."
"In our practice, approximately 85 – 90% of
patients with chronic pelvic pain – no
matter what the cause – experience sexual
pain or discomfort as the main contributor
to their diminished quality of life."
Dr. Echenberg
On the Secret Suffering website, we’ve created a safe haven for you to share your story and thoughts about sexual/pelvic pain and read others’, hear what experts in the field of sexual pain have to say, get the latest news and more. We encourage you or partners of those who suffer to blog in our Healing Room.
The Secret Suffering website is a joint effort of Dr. Robert J. Echenberg (we call him “Dr. E!”), gynecologist and specialist in the field of pelvic and sexual pain and women’s health for over three decades, and Susan Bilheimer, writer, developer of the PerimenopauseSupport.com website and sexual pain sufferer.
Together, we are writing a book called Secret Suffering, the first book that tells the story of how pelvic and sexual pain affects women and their partners, in their own words, and provides information on how to facilitate your healing and work with your doctor. You can read more about our bios here.
We did it! Our manuscript for Secret Suffering was sent to our publisher(Praeger)on November 28th. Anticipated publication date is May 30, 2009. It’s been quite a monumental task, but immensely rewarding. Click here to read more about the book.
In the meantime, we’ve written a tips booklet with suggestions on how to help yourself as you work with your doctor and for doctors to give to their patients. Click here to view a PDF product sheet or call 888-241-1461. We’ll be updating everything on the site soon!
Our Privacy Policy is very simple – we will never sell, share or distribute your contact information in any way. Period.
We have a very strict usage policy for this site. www.SecretSuffering.com is intended as a safe and comfortable online home for those who suffer from a very sensitive and delicate condition. Unsolicited advertising, spamming, flaming or inappropriate comments will be immediately deleted and their senders barred from future postings.
Please feel free to contact us at any time with your suggestions and comments.